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Health services research in neurological conditions – Charlotte Ytterberg's research group

Health services research in neurological disorders is an interdisciplinary field of research. Our research aims to contribute to improved health in people with neurological disability and in their families.

Research focus

Our research includes studies of associations between neurological disease/injury and health, function, activity and participation in society among individuals and their families. Also health care interventions are studied, both from an individual, group and a social perspective, as well as the overall relation to efficiency and cost.

Our research group also study needs for health care interventions, in people with neurological disabilities and their families, as well as utilization of these efforts and satisfaction with care.

News and activities

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Podcast: "Fysion säger..."

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Marie Kierkegaard guest on the the MS podcast

Marie Kierkegaard has worked in neurology since 1987. In this episode she talks about fatigue, brain health, answers questions and much more. Available in Swedish only.

Sebastian Lindblom Photo: Annika Clemes.

New thesis about care transitions after stroke

Sebastian Lindblom: "Understanding the links : the exploration of care transitions between hospital and continued rehabilitation in the home after stroke".

Publications

Selected publications

  • Article: MULTIPLE SCLEROSIS AND RELATED DISORDERS. 2023;70:104481
    Englund S; Kierkegaard M; Burman J; Fink K; Fogdell-Hahn A; Gunnarsson M; Hillert J; Langer-Gould A; Lycke J; Nilsson P; Salzer J; Svenningsson A; Mellergard J; Olsson T; Longinetti E; Frisell T; Piehl F
  • Review: CLINICAL REHABILITATION. 2023;37(2):162-176
    Tuvemo Johnson S; Flink M; Peterson E; Gottberg K; Elf M; Johansson S; Kierkegaard M; Ytterberg C
  • Conference publication: INTERNATIONAL JOURNAL OF STROKE. 2023;18(1):24-25
    Lindblom S; Flink M; Koch L; Ytterberg C
  • Article: BMJ OPEN. 2022;12(7):e061325
    Kierkegaard M; Peterson E; Tuvemo Johnson S; Gottberg K; Johansson S; Elf M; Flink M; Ytterberg C
  • Conference publication: MULTIPLE SCLEROSIS JOURNAL. 2022;28(3_SUPPL):405-406
    Englund S; Piehl F; Kierkegaard M
  • Article: JOURNAL OF NEUROMUSCULAR DISEASES. 2021;8(6):1079-1088
    Kierkegaard M; Gottberg K; Johansson S; Littorin S; Sandstedt P; Ytterberg C; Holmqvist LW
  • Article: DISABILITY AND REHABILITATION. 2021;43(17):2403-2410
    Gottberg K; Ytterberg C; Sandstedt P; Johansson S; Kierkegaard M
  • Article: HEALTH EXPECTATIONS. 2021;24(3):905-916
    Lindblom S; Flink M; Elf M; Laska AC; von Koch L; Ytterberg C
  • Article: JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION. 2020;21(12):1885-1892
    Lindblom S; Flink M; Sjostrand C; Laska A-C; von Koch L; Ytterberg C
  • Article: INTERNATIONAL JOURNAL OF INTEGRATED CARE. 2020;20(1):11
    Lindblom S; Ytterberg C; Elf M; Flink M
  • Article: JOURNAL OF NEUROMUSCULAR DISEASES. 2018;5(4):439-449
    Sandstedt P; Littorin S; Johansson S; Gottberg K; Ytterberg C; Kierkegaard M
  • Conference publication: INTERNATIONAL JOURNAL OF INTEGRATED CARE. 2018;18:317
    Lindblom S; Flink M; von Koch L; Ytterberg C
  • Article: JOURNAL OF SEXUAL MEDICINE. 2017;14(6):797-803
    Nilsson MI; Fugl-Meyer K; von Koch L; Ytterberg C
  • Article: NEUROMUSCULAR DISORDERS. 2017;27(2):153-158
    Kierkegaard M; Petitclerc E; Hebert LJ; Gagnon C
  • Article: JOURNAL OF CLINICAL PSYCHOLOGY. 2016;72(7):651-662
    Gottberg K; Chruzander C; Backenroth G; Johansson S; Ahlstrom G; Ytterberg C
  • Article: JOURNAL OF THE NEUROLOGICAL SCIENCES. 2016;362:251-257
    Kierkegaard M; Lundberg IE; Olsson T; Johansson S; Ygberg S; Opava C; Holmqvist LW; Piehl F
  • Article: STROKE. 2015;46(9):2688-2690
    Minet LR; Peterson E; von Koch L; Ytterberg C
  • Article: PLOS ONE. 2015;10(12):e0144344
    Singam A; Ytterberg C; Tham K; von Koch L
  • Article: JOURNAL OF REHABILITATION MEDICINE. 2013;45(5):452-457
    Ytterberg C; Einarsson U; Holmqvist LW; Peterson EW
  • Article: MULTIPLE SCLEROSIS JOURNAL. 2012;18(5):639-646
    Kierkegaard M; Einarsson U; Gottberg K; von Koch L; Holmqvist LW
  • Show more

Funding

Grants

  • A self-management program to prevent falls in ambulatory and non-ambulatory people with multiple sclerosis - a randomized controlled trial
    the Regional Agreement on Medical Training and Clinical Research (ALF) between Region Stockholm and ̽»¨¾«Ñ¡
  • A self-management program to prevent falls in ambulatory and non-ambulatory people with multiple sclerosis – a randomized controlled trial
    the Center for Innovative Medicine (CIMED)
  • Swedish Research Council
  • Swedish Research Council for Health Working Life and Welfare
  • Swedish Research Council for Health Working Life and Welfare
  • Swedish Research Council
  • Swedish Research Council for Health Working Life and Welfare
  • Person-centred care transitions for people with complex health conditions: a co-design project
    The Kamprad Family Foundation for Entrepreneurship, Research & Charity

Staff and contact

Group leader

All members of the group

Other people connected to the group

  • Rosenbek, Minet Lisbeth

Projects

Missing Link – Person-centred care transitions for persons who have had stroke: A co-design project

The overall aim is to develop, implement and evaluate person-centred care transitions between the stroke unit and the home for persons who have had stroke. The development is carried out in collaboration with persons who have had stroke, significant others, staff at stroke units and interdisciplinary home rehabilitation teams.

Missing Link

A self-management program to prevent falls in ambulatory and non-ambulatory community dwelling people with multiple sclerosis

The aim of this project is to develop and evaluate an innovative fall prevention program for ambulatory and non-ambulatory people with MS.

Falls and fall-related injuries are common among people with multiple sclerosis (MS) and can lead to fear of falling and a negative impact on the individual’s health. Research on fall preventive interventions among people with MS is limited. MS fall prevention research has overwhelmingly focused on ambulatory people with MS and has failed to address the needs of individuals only capable of walking a few steps or not at all. For all people with MS, evidence points to the need for interventions that address physical, behavioural, psychological and environmental risk factors, as well as the value of self-management strategies to support development and maintenance of healthy behaviours leading to reduced fall risk.

A self-management program to prevent falls in ambulatory and non-ambulatory community dwelling people with multiple sclerosis

Patient-reported experiences of daily life with disease-modifying therapy in multiple sclerosis (MS)

The aim of this study is to explore and describe patient-reported experiences of DMD in daily life in patients with MS.

For the purpose of decreasing progression of multiple sclerosis (MS), there are different disease-modifying drugs (DMD) registered, with various modes of administration (injections, oral therapies, infusions) and side-effect profiles. Clinical procedures for initiation and monitoring of the DMD differ nationally and internationally, though there are recommendations based on experience from the clinical trials and specific protocols for the various DMD. Development of evidence-based care for patients with MS requires knowledge about their experiences from living with disease-modifying drugs in daily life. A qualitative study is the first step within a larger research program aiming to increase understanding of patient-reported experiences of DMD in daily life.  

Patient-reported experiences of daily life with disease-modifying therapy in multiple sclerosis (MS)

High-intensity resistance training in PwMS experiencing fatigue - effects on functioning, wellbeing and inflammatory biological markers.

The aim of this study was to evaluate the effects of high-intensity resistance training on functioning, wellbeing/health-related quality of life and inflammatory biological markers in persons with MS-fatigue

Multiple sclerosis (MS) is chronic inflammatory neurodegenerative disease in the central nervous system. One of the most common and disabling symptom is fatigue. In persons with MS, fatigue is associated with activity limitations, participation restrictions and reduced health-related quality of life. MS-fatigue might be related directly to the disease, where increased levels of inflammatory biological markers (cytokines) contribute. Resistance training might have direct effects on the MS disease by modulating cytokine levels, where a higher training-intensity is thought to have a more profound effect. There are, however, a lack of high-quality studies on effects of high-intensity resistance training in persons with MS who suffer from MS-fatigue.

High-intensity resistance training in PwMS experiencing fatigue

Rehabilitation processes after stroke - needs, interventions and outcomes

There is a lack of knowledge of the long-term impact on daily life in persons who have had a stroke and their significant others, as well as needs for rehabilitation and support in different phases of the rehabilitation process after stroke. There is also a lack of knowledge on how the long-term care and rehabilitation after stroke should be organised.

We have in different studies pursued projects with the aim to increase knowledge on needs for rehabilitation and support in people with stroke and their significant others, and if and how these needs vary over time.

Rehabilitation processes after stroke - needs, interventions and outcomes

Theses

Doctoral theses

Sebastian Lindblom, 

Mia Forslin,

Petter Sandstedt,

Charlotte Chruzander,

Susanne Palmcrantz,

Marie Kierkegaard,

Sverker Johansson,

Charlotte Ytterberg,

Anna-Karin Welmer,

Kristina Gottberg,

Anette Forsberg,

Ulrika Einarsson,

Disa Sommerfeld,

Lena von Koch,

Lotta Widén Holmqvist,

Licentiate theses

Elsy Eek, A procedure for quantitative assessment of touch function in hands and feet using Hf/TENS; reliability for patients with stroke and recommended normative values 2009

Annica Wohlin Wottrich, On aspects of context in rehabilitation after stroke : views of patients and therapeutists, 2006

Ann-Mari Thorsén,

Keywords:
Health Care Service and Management, Health Policy and Services and Health Economy Health Services Research Multiple Sclerosis Neurology Neurosciences Show all
CY
Content reviewer:
Charlotte Ytterberg
Kathrin Dellblad
26-11-2024